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CSS Studenterkollokvium: Emily Rose Dainty

A pluralistic model of disability: The ethics of preimplantation genetic testing for achondroplasia

01.02.2021 | Randi Mosegaard

Dato ons 05 maj
Tid 14:15 15:00
Sted Zoom (email khn@css.au.dk for the link)

Abstract 

Models of disability are often disputed when discussing ethical dilemmas involving people with disabilities. To resolve these discussions, I suggest we combine Beauchamp and Childress' four principles of Bioethics with a pluralistic model of disability. By doing so, one can identify all ethical sides of cases involving disability, not just one. This is in comparison to using one model/definition of disability which is too restrictive. To present this idea, I utilise a case study of the ethics of preimplantation genetic testing for achondroplasia (dwarfism). In this case study I examine the ethical outcomes from Beauchamp and Childress' four principles of bioethics with three models of disability: The Medical Model, The Social Model, and The Biopsychosocial Model. These models lead us to different ethical conclusions from the four principles, informing that using just one model of disability is ethically misleading. I finally suggest that once the pluralistic investigation has been made, a dialogue with people with disabilities is to be had to make the most appropriate and ethical decision for the case.

Studenterkollokvium